van den Oever, Selina R.; de Beijer, Ismay A. E.; Kremer, Leontien C. M.; Alfes, Marie; Balaguer, Julia; Bardi, Edit; Nieto, Adela Cañete; Cangioli, Giorgio; Charalambous, Eliana; Chronaki, Catherine; Costa, Tiago; Degelsegger, Alexander; Düster, Vanessa; Filbert, Anna-Liesa; Grabow, Desiree; Gredinger, Gerald; Gsell, Hannah; Haupt, Riccardo; van Helvoirt, Maria; Ladenstein, Ruth; Langer, Thorsten; Laschkolnig, Anja; Muraca, Monica; Rascon, Jelena; Schreier, Günter; Tomasikova, Zuzana; Tormo, Maria Teresa; Trinkunas, Justas; Trollip, Jessica; Trunner, Kathrin; Uyttebroeck, Anne; van der Pal, Helena J. H.; Pluijm, Saskia M. F.; Grabow, Desiree; Filbert, Anna-Liesa; Niehoff, Dorothea; Walz, Diana; Erdmann, Friederike; Spix, Claudia; Haupt, Riccardo; Muraca, Monica; Lightwood, Simone; Bagnasco, Francesca; Cavalca, Giacomo; Oberti, Sara; Nicolas, Brigitte; Ladenstein, Ruth; Bardi, Edit; Düster, Vanessa; Uyttebroeck, Anne; van Helvoirt, Maria; Lemiere, Jurgen; Renard, Marleen; Michiels, An; Langer, Thorsten; Kock-Schoppenhauer, Ann-Kristin; Hildebrand, Lea; Neumann, Anke; Jahnke, Anne-Katrin; Rascon, Jelena; Trinkūnas, Justas; Ciesiūnienė, Audronė; Ragauskas, Paulius; Cañete Nieto, Adela; Balaguer Guill, Julia; Tormo Alcañiz, Maria Teresa; Galan, Antonio Orduña; Correcher Palau, Marisa; Beltrán, Lucas Cervero; Pons Tamarit, Vicente; Saraceno, Davide; Berti, Alessandra; Contino, Carlo; Thomopulos, Nikos; Stabile, Giulia; Tomassi, Maria Franca; Zamberlan, Igor; Nichel, Barbara; Schreier, Günter; Hayn, Dieter; Kreiner, Karl; Beyer, Stefan; Chronaki, Catherine; Cangioli, Giorgio; Charalambous, Eliana; Degelsegger-Márquez, Alexander; Gredinger, Gerald; Trunner, Kathrin; Trauner, Florian; Laschkolnig, Anja; Kremer, Leontien; van der Pal, Heleen; Pluijm, Saskia; van den Oever, Selina; de Beijer, Ismay; Trollip, Jessica; Hardijzer, Emma; van der Pal, Heleen; den Hartogh, Jaap; te Dorsthorst, Jeroen; Essiaf, Samira; Sciberras, William; Kienesberger, Anita; Gsell, Hannah; Schneider, Carina; Tomasikova, Zuzana (2023): Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study. Journal of Cancer Survivorship. ISSN 1932-2259

Full text not available from this repository.
Official URL (please open in a new browser tab/window):


PURPOSE: Long-term follow-up (LTFU) care for childhood cancer survivors (CCSs) is essential to improve and maintain their quality of life. The Survivorship Passport (SurPass) is a digital tool which can aid in the delivery of adequate LTFU care. During the European PanCareSurPass (PCSP) project, the SurPass v2.0 will be implemented and evaluated at six LTFU care clinics in Austria, Belgium, Germany, Italy, Lithuania and Spain. We aimed to identify barriers and facilitators to the implementation of the SurPass v2.0 with regard to the care process as well as ethical, legal, social and economical aspects. *** METHODS: An online, semi-structured survey was distributed to 75 stakeholders (LTFU care providers, LTFU care program managers and CCSs) affiliated with one of the six centres. Barriers and facilitators identified in four centres or more were defined as main contextual factors influencing implementation of SurPass v2.0. *** RESULTS: Fifty-four barriers and 50 facilitators were identified. Among the main barriers were a lack of time and (financial) resources, gaps in knowledge concerning ethical and legal issues and a potential increase in health-related anxiety in CCSs upon receiving a SurPass. Main facilitators included institutions’ access to electronic medical records, as well as previous experience with SurPass or similar tools. *** CONCLUSIONS: We provided an overview of contextual factors that may influence SurPass implementation. Solutions should be found to overcome barriers and ensure effective implementation of SurPass v2.0 into routine clinical care.

Implications for Cancer Survivors
These findings will be used to inform on an implementation strategy tailored for the six centres.

Item Type: Article
Subjects: OEBIG > Gesundheitsoekonomie und –systemanalyse
Internationales, Policy, Evaluation und Digitalisierung
Date Deposited: 05 Apr 2023 18:44
Last Modified: 15 Jun 2023 09:22